Comments on: Treating Lupus: A Physician-Patient Perspective http://essiewb.wordpress.com/2008/07/18/treating-lupus-a-physician-patient-perspective/ Knitting My Way Through Thu, 10 Sep 2009 14:05:24 +0000 http://wordpress.com/ hourly 1 By: melene watkins http://essiewb.wordpress.com/2008/07/18/treating-lupus-a-physician-patient-perspective/#comment-1241 melene watkins Tue, 10 Mar 2009 20:30:45 +0000 http://essiewb.wordpress.com/?p=429#comment-1241 does anyone know of a company that will insure a person with lupus? does anyone know of a company that will insure a person with lupus?

]]> By: melene watkins http://essiewb.wordpress.com/2008/07/18/treating-lupus-a-physician-patient-perspective/#comment-1239 melene watkins Tue, 10 Mar 2009 19:38:31 +0000 http://essiewb.wordpress.com/?p=429#comment-1239 will life insurance pay out if lupus is the cause of death and this condition is not mentioned on initial application? will life insurance pay out if lupus is the cause of death and this condition is not mentioned on initial application?

]]> By: Carla http://essiewb.wordpress.com/2008/07/18/treating-lupus-a-physician-patient-perspective/#comment-920 Carla Fri, 25 Jul 2008 16:31:13 +0000 http://essiewb.wordpress.com/?p=429#comment-920 hey i got a question for you. and maybe you're nto allowed to answer. but why are doctors trying to "undiagnose" people who have lupus? is there a quota that they are only allowed to diagnose so many people with lupus, then it raises a red flag to somebody, like writing too many pain med Rxs? what is up with this trend? and now you have to have conclusive blood tests to get a diagnosis, when there are no truly conclusive blood tests? pressure from the government to keep people from being able to get disability? docs not wanting to write "lupus" on the chart because they want to protect the patient from not being able to get life insurance? what is going on?? (this is not my problem, as I consistently more than meet the criteria, but it is a major trend in my lupus chat group). hey i got a question for you. and maybe you’re nto allowed to answer. but why are doctors trying to “undiagnose” people who have lupus? is there a quota that they are only allowed to diagnose so many people with lupus, then it raises a red flag to somebody, like writing too many pain med Rxs? what is up with this trend? and now you have to have conclusive blood tests to get a diagnosis, when there are no truly conclusive blood tests? pressure from the government to keep people from being able to get disability? docs not wanting to write “lupus” on the chart because they want to protect the patient from not being able to get life insurance? what is going on?? (this is not my problem, as I consistently more than meet the criteria, but it is a major trend in my lupus chat group).

]]> By: Carla http://essiewb.wordpress.com/2008/07/18/treating-lupus-a-physician-patient-perspective/#comment-919 Carla Fri, 25 Jul 2008 16:26:40 +0000 http://essiewb.wordpress.com/?p=429#comment-919 refreshing to see a doctor taking the time to join and read the posts in a lupus group. i've often wondered what ever happened to the "First do no harm" thing! So I'm glad to hear your approach of using as little Prednisone as possible. If more docs took this approach, they would probably get less "rebellious" behavior from their patients. The 3rd flare I went into I was given small doses of anti-anxiety meds which made *all* the difference when i was on high doses of prednisone. I was thinking "not to be ungrateful but where was this the other 2 times I was climbing the wall and wanted to jump out of my skin?" I get so tired of docs who are so obsessed with saving my kidneys that they forget about the rest of me, suffering greatly with continued pain and horrbile steroid side effects. As I told one doc "i know i *have* to take it but i don't ahve ot like it!" (meaning i don't need the lecture abotu why i'm taking it. i was trying to get across how unbearable the side effects of the prednisone were, and instead of him addressing the side effects, I got a lecture on why i need to take it. Having lupus for 16 years I already knew why i had to take it!) Eventually, my concerns were heard and i got the attivan. i'm not sure i could have stood one more minute in the hospital on that amount of prednisone if he hadn't given me something to counter the effects. I also am surprised more docs don't use diurectics, esp when our legs are swollen and we have high BP. i got diuretics the 2nd flare only. i've lived in a different place for each flare, and the treatments are not at all consistent. refreshing to see a doctor taking the time to join and read the posts in a lupus group. i’ve often wondered what ever happened to the “First do no harm” thing! So I’m glad to hear your approach of using as little Prednisone as possible. If more docs took this approach, they would probably get less “rebellious” behavior from their patients.

The 3rd flare I went into I was given small doses of anti-anxiety meds which made *all* the difference when i was on high doses of prednisone. I was thinking “not to be ungrateful but where was this the other 2 times I was climbing the wall and wanted to jump out of my skin?”

I get so tired of docs who are so obsessed with saving my kidneys that they forget about the rest of me, suffering greatly with continued pain and horrbile steroid side effects. As I told one doc “i know i *have* to take it but i don’t ahve ot like it!” (meaning i don’t need the lecture abotu why i’m taking it. i was trying to get across how unbearable the side effects of the prednisone were, and instead of him addressing the side effects, I got a lecture on why i need to take it. Having lupus for 16 years I already knew why i had to take it!)

Eventually, my concerns were heard and i got the attivan. i’m not sure i could have stood one more minute in the hospital on that amount of prednisone if he hadn’t given me something to counter the effects.

I also am surprised more docs don’t use diurectics, esp when our legs are swollen and we have high BP. i got diuretics the 2nd flare only. i’ve lived in a different place for each flare, and the treatments are not at all consistent.

]]> By: Midwife with a Knife http://essiewb.wordpress.com/2008/07/18/treating-lupus-a-physician-patient-perspective/#comment-902 Midwife with a Knife Mon, 21 Jul 2008 01:52:23 +0000 http://essiewb.wordpress.com/?p=429#comment-902 Nothing to say, other than that was a fantastic post!!! Nothing to say, other than that was a fantastic post!!!

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